Today begins the second cycle of chemotherapy treatment. As mentioned, I’m on a two week on, two week off cycle so essentially it’s one cycle of treatment per month. The day began with a consultation in the Myeloma clinic which proved to be very useful indeed. We discussed my current state, how I’m coping with side effects and previous blood test results. Interestingly my previous bloods have shown a very positive reaction to the first cycle of treatment; protein levels have dropped right down and our consultant seemed confident this may reduce the number of chemotherapy cycles I need to endure. Nothing is certain of course and we’ll see how we go, but it mean the looming stem cell transplant could be scheduled a month or two earlier - well away from Christmas, which would be nice. We moved on to maintenance therapy and discussed our fundraising efforts, and we took our consultant’s view on some of the options we might have for obtaining the Revlimid drug when we get to that stage. A very interesting and productive morning.
Then we we moved on to the drugs stage; up to ward 36 for more bloods, and my Zometa infusion before a brief hiatus, returning later in the afternoon for my Velcade injection. Once again, I didn’t leave empty handed - a plastic bag this time (tsk) but full of more of the good stuff I need to take over the next 28 days. Aside from the fatigue, soreness and light-headedness, I feel like I’m already kicking this myeloma’s ass, and if these blood tests continue to show a downward trend, the data just might start to back that up.
7 Comments
Jane Finbow
9/6/2019 22:54:24
I have myeloma, in remission after SCT in Feb 2019. I feel strongly about lenalidomide maintenance too. Unfortunately NICE/NHS & Celgenes discussions are moving very slowly, not in my time frame for maintenance. After much research I have decided to import a generic version of lenalidomide from India, which I am now taking with my consultants knowledge and approval. This costs a fraction of the cost of Revlimid, approx £100 per month.
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Anne Wilson
12/6/2019 07:43:10
I’m pleased you are now connected with Myeloma UK. I was fund raising for the charity from shortly after my late husband’s diagnosis in 2015 and we raised quite a lot in lieu of flowers at his funeral. My husband was diagnosed late as raised paraprotein was missed in 2012. Once diagnosed his treatment at PhoenixUnit Sunderland Royal (outposted from NCC) was excellent. Your hopefully earlier diagnosis and speedy response to chemo so far is a positive sign for the future. My husband was 67 when diagnosed and had had a great life and seen his children grow up and I very much wish the same for you and your family. Wishing you all the very best and keep publicising this cruel and little known disease. Sending warm wishes to you all.
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David Jameson
26/6/2019 13:19:18
Hi Anne,
David Jameson
26/6/2019 13:13:48
Hi Jane,
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David Jameson
27/6/2019 20:14:16
Hi Jane,
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Sarah Williamson
21/6/2019 11:48:59
Hi Dave,
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David Jameson
26/6/2019 13:37:31
Hi Sarah,
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About meI'm David Jameson, I live in Whitley Bay with my beautiful wife Janine, our two children and our two dogs. I love music, and Newcastle United. And I have multiple myeloma. Archives
June 2020
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