I haven’t been in a writing sort of mood much lately but things have been going pretty okay since the turn of the year. I have gradually started to take more varied foods as the nausea subsided - out with the Pot Noodles and in with the jacket potato & beans, and the egg baps for example. Into January and I not only started to feel a bit like a normal person, but also began to enjoy some initial signs of hair growth! Wooly hats have been my thing lately what with it being a particularly chilly winter. I’m just not used to having a bald head so the sight of some hair has given me a huge lift. Generally I’m making good progress with my recovery every day and I’m feeling positive about it all. Negatives; my lower back is still tender, my feet are sore (neuropathy) and I tire easily but I expect that’ll all improve as we go. As a family, we’re all becoming more careful about what we eat now too - no meat and radically reduced dairy, although we can’t all claim to be full vegans. For me Veganish is probably accurate as, although I’m not eating meat or drinking cow’s milk, I do have eggs and a bit of cheese here and there. Small steps. The maintenance treatment plan starts later this month and will consist of 8 repurposed drugs (from a doctor we had consultations with through last year), along with India-sourced Lenalidomide. The repurposed drugs plan has been tailored for me and the drugs have been selected to attack myeloma cancer pathways specifically. It’s all well-tolerated, and low-toxicity stuff so unlikely to cause any issues. Anyway, all this will make the £90k we raised go much further, and thanks to the support & generosity of you all, and all who have donated during last year, with this approach the cash will last 3 years rather than 1.5. Then we will see what’s what in 3 years time. So, is the cancer still at bay? We think so - the blood tests I’ve had haven’t raised any alarm in the oncology ranks at the Freeman - but this week I had another PET scan so we’ll soon find out for certain. The report from the scan should be made available to the oncology team and should be up for discussion by the next myeloma clinic appointment which I have next week. Hoping for a good result, and continued wellness in my recovery. Keep your fingers crossed for me. I’m coming back baby!
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About meI'm David Jameson, I live in Whitley Bay with my beautiful wife Janine, our two children and our two dogs. I love music, and Newcastle United. And I have multiple myeloma. Archives
June 2020
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